Quality of life and impact of children with unclassified developmental delays

Ru Lan Hsieh, Yu Mei Hsueh, Hsiao Yuan Huang, Ming I. Lin, Wei Che Tseng, Wen Chung Lee

研究成果: 雜誌貢獻文章

11 引文 (Scopus)

摘要

Aims The study aims to evaluate the quality of life (QOL) and health of children with unclassified developmental delays and the impacts this had on the family. Methods In total, 60 parents of pre-school children with unclassified developmental delays and 56 parents of age and gender-matched children with typical development were recruited. We administered the Pediatric Quality of Life Inventory (PedsQL)-Generic Core Scale and Pediatric Outcomes Data Collection Instrument to parents to evaluate the QOL and health status of their children. Parents were evaluated by World Health Organization-Quality of Life-Brief Version, PedsQL-Family Impact Module, Hospital Anxiety and Depression Scale, and PedsQL-Health satisfaction to assess the impacts of this situation on the family. Variables related to QOL and functions of children with unclassified developmental delays were analysed by stepwise regression analysis. Results Comparing children with typical development, children with unclassified developmental delays had a significantly lower QOL (including both psychosocial and physical components) and health status. Their parents had a significantly lower QOL, family function and health satisfaction, and higher psychological distress than parents of children with typical development. Gross-motor delay impacts on QOL of these children (regression coefficient: -9.59, P <0.05), global functioning is related to cognition delay (regression coefficient: -20.22, P <0.01) and physical health of their parents (regression coefficient: 0.87, P <0.01). Conclusions Children with unclassified developmental delays had lower QOL and health status, and their condition had greater impacts on the family than children with typical development. Gross motor and cognition development related to the QOL and global functioning in these children.

原文英語
期刊Journal of Paediatrics and Child Health
49
發行號2
DOIs
出版狀態已發佈 - 二月 2013

指紋

Quality of Life
Parents
Health Status
Cognition
Pediatrics
Family Health
Health
Child Development
Anxiety
Regression Analysis
Depression
Psychology
Equipment and Supplies

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

引用此文

Quality of life and impact of children with unclassified developmental delays. / Hsieh, Ru Lan; Hsueh, Yu Mei; Huang, Hsiao Yuan; Lin, Ming I.; Tseng, Wei Che; Lee, Wen Chung.

於: Journal of Paediatrics and Child Health, 卷 49, 編號 2, 02.2013.

研究成果: 雜誌貢獻文章

Hsieh, Ru Lan ; Hsueh, Yu Mei ; Huang, Hsiao Yuan ; Lin, Ming I. ; Tseng, Wei Che ; Lee, Wen Chung. / Quality of life and impact of children with unclassified developmental delays. 於: Journal of Paediatrics and Child Health. 2013 ; 卷 49, 編號 2.
@article{ba75fc9dd2da4e3aa345e5eac51696a7,
title = "Quality of life and impact of children with unclassified developmental delays",
abstract = "Aims The study aims to evaluate the quality of life (QOL) and health of children with unclassified developmental delays and the impacts this had on the family. Methods In total, 60 parents of pre-school children with unclassified developmental delays and 56 parents of age and gender-matched children with typical development were recruited. We administered the Pediatric Quality of Life Inventory (PedsQL)-Generic Core Scale and Pediatric Outcomes Data Collection Instrument to parents to evaluate the QOL and health status of their children. Parents were evaluated by World Health Organization-Quality of Life-Brief Version, PedsQL-Family Impact Module, Hospital Anxiety and Depression Scale, and PedsQL-Health satisfaction to assess the impacts of this situation on the family. Variables related to QOL and functions of children with unclassified developmental delays were analysed by stepwise regression analysis. Results Comparing children with typical development, children with unclassified developmental delays had a significantly lower QOL (including both psychosocial and physical components) and health status. Their parents had a significantly lower QOL, family function and health satisfaction, and higher psychological distress than parents of children with typical development. Gross-motor delay impacts on QOL of these children (regression coefficient: -9.59, P <0.05), global functioning is related to cognition delay (regression coefficient: -20.22, P <0.01) and physical health of their parents (regression coefficient: 0.87, P <0.01). Conclusions Children with unclassified developmental delays had lower QOL and health status, and their condition had greater impacts on the family than children with typical development. Gross motor and cognition development related to the QOL and global functioning in these children.",
keywords = "children, developmental delay, family impact, health, quality of life",
author = "Hsieh, {Ru Lan} and Hsueh, {Yu Mei} and Huang, {Hsiao Yuan} and Lin, {Ming I.} and Tseng, {Wei Che} and Lee, {Wen Chung}",
year = "2013",
month = "2",
doi = "10.1111/jpc.12081",
language = "English",
volume = "49",
journal = "Journal of Paediatrics and Child Health",
issn = "1034-4810",
publisher = "Wiley-Blackwell",
number = "2",

}

TY - JOUR

T1 - Quality of life and impact of children with unclassified developmental delays

AU - Hsieh, Ru Lan

AU - Hsueh, Yu Mei

AU - Huang, Hsiao Yuan

AU - Lin, Ming I.

AU - Tseng, Wei Che

AU - Lee, Wen Chung

PY - 2013/2

Y1 - 2013/2

N2 - Aims The study aims to evaluate the quality of life (QOL) and health of children with unclassified developmental delays and the impacts this had on the family. Methods In total, 60 parents of pre-school children with unclassified developmental delays and 56 parents of age and gender-matched children with typical development were recruited. We administered the Pediatric Quality of Life Inventory (PedsQL)-Generic Core Scale and Pediatric Outcomes Data Collection Instrument to parents to evaluate the QOL and health status of their children. Parents were evaluated by World Health Organization-Quality of Life-Brief Version, PedsQL-Family Impact Module, Hospital Anxiety and Depression Scale, and PedsQL-Health satisfaction to assess the impacts of this situation on the family. Variables related to QOL and functions of children with unclassified developmental delays were analysed by stepwise regression analysis. Results Comparing children with typical development, children with unclassified developmental delays had a significantly lower QOL (including both psychosocial and physical components) and health status. Their parents had a significantly lower QOL, family function and health satisfaction, and higher psychological distress than parents of children with typical development. Gross-motor delay impacts on QOL of these children (regression coefficient: -9.59, P <0.05), global functioning is related to cognition delay (regression coefficient: -20.22, P <0.01) and physical health of their parents (regression coefficient: 0.87, P <0.01). Conclusions Children with unclassified developmental delays had lower QOL and health status, and their condition had greater impacts on the family than children with typical development. Gross motor and cognition development related to the QOL and global functioning in these children.

AB - Aims The study aims to evaluate the quality of life (QOL) and health of children with unclassified developmental delays and the impacts this had on the family. Methods In total, 60 parents of pre-school children with unclassified developmental delays and 56 parents of age and gender-matched children with typical development were recruited. We administered the Pediatric Quality of Life Inventory (PedsQL)-Generic Core Scale and Pediatric Outcomes Data Collection Instrument to parents to evaluate the QOL and health status of their children. Parents were evaluated by World Health Organization-Quality of Life-Brief Version, PedsQL-Family Impact Module, Hospital Anxiety and Depression Scale, and PedsQL-Health satisfaction to assess the impacts of this situation on the family. Variables related to QOL and functions of children with unclassified developmental delays were analysed by stepwise regression analysis. Results Comparing children with typical development, children with unclassified developmental delays had a significantly lower QOL (including both psychosocial and physical components) and health status. Their parents had a significantly lower QOL, family function and health satisfaction, and higher psychological distress than parents of children with typical development. Gross-motor delay impacts on QOL of these children (regression coefficient: -9.59, P <0.05), global functioning is related to cognition delay (regression coefficient: -20.22, P <0.01) and physical health of their parents (regression coefficient: 0.87, P <0.01). Conclusions Children with unclassified developmental delays had lower QOL and health status, and their condition had greater impacts on the family than children with typical development. Gross motor and cognition development related to the QOL and global functioning in these children.

KW - children

KW - developmental delay

KW - family impact

KW - health

KW - quality of life

UR - http://www.scopus.com/inward/record.url?scp=84874106698&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84874106698&partnerID=8YFLogxK

U2 - 10.1111/jpc.12081

DO - 10.1111/jpc.12081

M3 - Article

C2 - 23316900

AN - SCOPUS:84874106698

VL - 49

JO - Journal of Paediatrics and Child Health

JF - Journal of Paediatrics and Child Health

SN - 1034-4810

IS - 2

ER -