Quality of life after traumatic brain injury

The clinical use of the QOLIBRI, a novel disease-specific instrument

The QOLIBRI Task Force

研究成果: 雜誌貢獻文章

72 引文 (Scopus)

摘要

Objective: To report the clinical use of the QOLIBRI, a disease-specific measure of health-related quality-of-life (HRQoL) after traumatic brain injury (TBI). Methods: The QOLIBRI, with 37 items in six scales (cognition, self, daily life and autonomy, social relationships, emotions and physical problems) was completed by 795 patients in six languages (Finnish, German, Italian, French, English and Dutch). QOLIBRI scores were examined by variables likely to be influenced by rehabilitation interventions and included socio-demographic, functional outcome, health status and mental health variables. Results: The QOLIBRI was self-completed by 73 of participants and 27 completed it in interview. It was sensitive to areas of life amenable to intervention, such as accommodation, work participation, health status (including mental health) and functional outcome. Conclusion: The QOLIBRI provides information about patient's subjective perception of his/her HRQoL which supplements clinical measures and measures of functional outcome. It can be applied across different populations and cultures. It allows the identification of personal needs, the prioritization of therapeutic goals and the evaluation of individual progress. It may also be useful in clinical trials and in longitudinal studies of TBI recovery.

原文英語
頁(從 - 到)1272-1291
頁數20
期刊Brain Injury
24
發行號11
DOIs
出版狀態已發佈 - 十月 1 2010

指紋

Health Status
Mental Health
Quality of Life
Diagnostic Self Evaluation
Cognition
Longitudinal Studies
Emotions
Language
Rehabilitation
Demography
Outcome Assessment (Health Care)
Clinical Trials
Interviews
Population
Traumatic Brain Injury
Health
Therapeutics
Finnish Language
Physical
Accommodation

ASJC Scopus subject areas

  • Neuroscience (miscellaneous)
  • Developmental and Educational Psychology
  • Arts and Humanities (miscellaneous)
  • Clinical Neurology

引用此文

Quality of life after traumatic brain injury : The clinical use of the QOLIBRI, a novel disease-specific instrument. / The QOLIBRI Task Force.

於: Brain Injury, 卷 24, 編號 11, 01.10.2010, p. 1272-1291.

研究成果: 雜誌貢獻文章

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title = "Quality of life after traumatic brain injury: The clinical use of the QOLIBRI, a novel disease-specific instrument",
abstract = "Objective: To report the clinical use of the QOLIBRI, a disease-specific measure of health-related quality-of-life (HRQoL) after traumatic brain injury (TBI). Methods: The QOLIBRI, with 37 items in six scales (cognition, self, daily life and autonomy, social relationships, emotions and physical problems) was completed by 795 patients in six languages (Finnish, German, Italian, French, English and Dutch). QOLIBRI scores were examined by variables likely to be influenced by rehabilitation interventions and included socio-demographic, functional outcome, health status and mental health variables. Results: The QOLIBRI was self-completed by 73 of participants and 27 completed it in interview. It was sensitive to areas of life amenable to intervention, such as accommodation, work participation, health status (including mental health) and functional outcome. Conclusion: The QOLIBRI provides information about patient's subjective perception of his/her HRQoL which supplements clinical measures and measures of functional outcome. It can be applied across different populations and cultures. It allows the identification of personal needs, the prioritization of therapeutic goals and the evaluation of individual progress. It may also be useful in clinical trials and in longitudinal studies of TBI recovery.",
keywords = "assessment, health-related quality of life, international, multi-centre study, QOLIBRI, Traumatic brain injury",
author = "{The QOLIBRI Task Force} and Truelle, {Jean Luc} and Sanna Koskinen and Graeme Hawthorne and Jaana Sarajuuri and Rita Formisano and {Von Wild}, Klaus and Edmund Neugebauer and Lindsay Wilson and Henning Gibbons and Jane Powell and Monika Bullinger and Stefan H{\"o}fer and Andrew Maas and George Zitnay and {Von Steinbuechel}, Nicole and Eddy Neugebauer and Jane Powell and George Zitnay and Wilbert Bakx and Armando Basso and Lucia Braga and Chiu, {Wen Ta} and Christensen, {Anne Lise} and Christine Croisiaux and John Davanzo and Rita Formisano and Sandra Guerreiro and Graeme Hawthorne and Yoichi Katayama and Sanna Koskinen and Eloise Longo and Dafin Muresanu and Maria Pachalska and Poon, {Wai San} and Alexander Potapov and Jaana Sarajuuri and Eva Tazopoulou and Zang Thong and Rimantas Vilcinis and Eka Wahjoepramono and Monika Bullinger and Henning Gibbons and Graeme Hawthorne and Stefan Hofer and Tanja Lischetzke and Nadine Sasse and Silke Schmidt and {Von Steinbiichel}, Nicole and Lindsay Wilson and Wolfgang Woerner",
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AU - Formisano, Rita

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AU - Neugebauer, Edmund

AU - Wilson, Lindsay

AU - Gibbons, Henning

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AU - Bullinger, Monika

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AU - Zitnay, George

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AU - Basso, Armando

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AU - Chiu, Wen Ta

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AU - Croisiaux, Christine

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AU - Katayama, Yoichi

AU - Koskinen, Sanna

AU - Longo, Eloise

AU - Muresanu, Dafin

AU - Pachalska, Maria

AU - Poon, Wai San

AU - Potapov, Alexander

AU - Sarajuuri, Jaana

AU - Tazopoulou, Eva

AU - Thong, Zang

AU - Vilcinis, Rimantas

AU - Wahjoepramono, Eka

AU - Bullinger, Monika

AU - Gibbons, Henning

AU - Hawthorne, Graeme

AU - Hofer, Stefan

AU - Lischetzke, Tanja

AU - Sasse, Nadine

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AU - Wilson, Lindsay

AU - Woerner, Wolfgang

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N2 - Objective: To report the clinical use of the QOLIBRI, a disease-specific measure of health-related quality-of-life (HRQoL) after traumatic brain injury (TBI). Methods: The QOLIBRI, with 37 items in six scales (cognition, self, daily life and autonomy, social relationships, emotions and physical problems) was completed by 795 patients in six languages (Finnish, German, Italian, French, English and Dutch). QOLIBRI scores were examined by variables likely to be influenced by rehabilitation interventions and included socio-demographic, functional outcome, health status and mental health variables. Results: The QOLIBRI was self-completed by 73 of participants and 27 completed it in interview. It was sensitive to areas of life amenable to intervention, such as accommodation, work participation, health status (including mental health) and functional outcome. Conclusion: The QOLIBRI provides information about patient's subjective perception of his/her HRQoL which supplements clinical measures and measures of functional outcome. It can be applied across different populations and cultures. It allows the identification of personal needs, the prioritization of therapeutic goals and the evaluation of individual progress. It may also be useful in clinical trials and in longitudinal studies of TBI recovery.

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