照護一位肝癌末期病人接受臨床試驗失敗之護理經驗

The article was to describe the nursing experience of a patient with advanced stage of hepatocellular carcinoma (HCC), who suffered from a high level of physical and psychological distress after failing cancer clinical trial from 29 September to 28 October, 2015. Gordon’s 11 healthy functional patterns were used to assess his health problems through observation, interviewing, and physical examination. Problems included cancer pain, fluid overload-ascites and limb lymphedema, and hopelessness due to the rapid progressive disease. We provided nursing care to improve his symptom distress, including analgesics, non-pharmacological pain management, aromatherapy with massage, and decongestive therapy of limb lymphedema. Moreover, psychological supports were provided, including integrating the hospice and palliative shared care team, doing patient's life review, understanding the meaning of life and the value of life, and termination-goodbyes to family members and important friends. Finally, his last wish with hospice-dying at home and the purpose of having a Good Dying were completed. We expected to provide this nursing experience in caring for patients who fail the clinical trial as a reference for nurses.