The effects of perceived stigma on quality of life outcomes in persons with early-stage dementia: Longitudinal findings: Part 2

Sandy C. Burgener, Kathleen Buckwalter, Yelena Perkhounkova, Fang Liu

Research output: Contribution to journalArticle

29 Citations (Scopus)

Abstract

This article is the second report from a study examining perceived stigma in persons with dementia with findings regarding the association between stigma and quality of life outcomes being reported here. Fifty persons with dementia and 47 family caregivers were sampled, with data being collected at baseline and six, 12, and 18 months. The modified Stigma Impact Scale measured perceived stigma. Quality of life outcomes included: depression, anxiety, behavioral symptoms, personal control, physical health, self-esteem, social support, and activity participation. Linear mixed model or generalized linear mixed model (for depression) analyses revealed that some aspect of perceived stigma was associated with each outcome. Social rejection was associated with anxiety, behavioral symptoms, health, and activity participation. Internalized shame was associated with anxiety, personal control, health, self-esteem, social support understanding and assistance, and activity participation. Finally, social isolation was associated with depression, anxiety, personal control, health, self-esteem, social support understanding, and activity participation. The complexity of relationships between perceived stigma and quality of life outcomes is evident from these findings.

Original languageEnglish
Pages (from-to)609-632
Number of pages24
JournalDementia
Volume14
Issue number5
DOIs
Publication statusPublished - Sep 1 2015

Fingerprint

dementia
quality of life
human being
anxiety
self-esteem
social support
participation
health
shame
caregiver
Stigma
Person
Quality of Life
Dementia
social isolation
assistance
Participation
Anxiety
Social Support
Self-esteem

Keywords

  • community-dwelling
  • early stage dementia
  • mixed model analysis
  • perceived stigma
  • quality of life

ASJC Scopus subject areas

  • History
  • Social Sciences(all)
  • Sociology and Political Science

Cite this

The effects of perceived stigma on quality of life outcomes in persons with early-stage dementia : Longitudinal findings: Part 2. / Burgener, Sandy C.; Buckwalter, Kathleen; Perkhounkova, Yelena; Liu, Fang.

In: Dementia, Vol. 14, No. 5, 01.09.2015, p. 609-632.

Research output: Contribution to journalArticle

Burgener, Sandy C. ; Buckwalter, Kathleen ; Perkhounkova, Yelena ; Liu, Fang. / The effects of perceived stigma on quality of life outcomes in persons with early-stage dementia : Longitudinal findings: Part 2. In: Dementia. 2015 ; Vol. 14, No. 5. pp. 609-632.
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