Perceived stigma in persons with early-stage dementia: Longitudinal findings: Part 1

Sandy C. Burgener, Kathleen Buckwalter, Yelena Perkhounkova, Megan F. Liu, Rebecca Riley, Carol J. Einhorn, Suzanne Fitzsimmons, Carolyn Hahn-Swanson

Research output: Contribution to journalArticle

21 Citations (Scopus)

Abstract

This longitudinal study examined perceived stigma in persons with dementia, with 50 persons with dementia, and 47 corresponding family caregivers. Data were collected at baseline and at 6, 12, and 18 months. Study results are reported in two parts, with findings regarding the stability of perceived stigma, measured using the modified Stigma Impact Scale, and relationship of stigma to person-centered variables being reported here. Findings included stability in perceived stigma, which did not show a downward trend until 18 months. Significant differences at baseline were found only for geographic location (rural vs. urban) with persons living in urban areas having higher levels of Stigma Impact Scale internalized shame compared to rural counterparts. Cognitive functioning was significantly, positively related to the Stigma Impact Scale social rejection and social isolation subscales. Findings support the enduring nature of perceived stigma over the early disease stages and the relationship of perceived stigma to some person-centered characteristics.

Original languageEnglish
Pages (from-to)589-608
Number of pages20
JournalDementia
Volume14
Issue number5
DOIs
Publication statusPublished - Sep 1 2015

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dementia
human being
Dementia
Stigma
Person
shame
caregiver
social isolation
longitudinal study
urban area
Disease
trend

Keywords

  • dementia
  • disease stage
  • living situation
  • person-centered characteristics
  • stigma

ASJC Scopus subject areas

  • History
  • Social Sciences(all)
  • Sociology and Political Science

Cite this

Burgener, S. C., Buckwalter, K., Perkhounkova, Y., Liu, M. F., Riley, R., Einhorn, C. J., ... Hahn-Swanson, C. (2015). Perceived stigma in persons with early-stage dementia: Longitudinal findings: Part 1. Dementia, 14(5), 589-608. https://doi.org/10.1177/1471301213508399

Perceived stigma in persons with early-stage dementia : Longitudinal findings: Part 1. / Burgener, Sandy C.; Buckwalter, Kathleen; Perkhounkova, Yelena; Liu, Megan F.; Riley, Rebecca; Einhorn, Carol J.; Fitzsimmons, Suzanne; Hahn-Swanson, Carolyn.

In: Dementia, Vol. 14, No. 5, 01.09.2015, p. 589-608.

Research output: Contribution to journalArticle

Burgener, SC, Buckwalter, K, Perkhounkova, Y, Liu, MF, Riley, R, Einhorn, CJ, Fitzsimmons, S & Hahn-Swanson, C 2015, 'Perceived stigma in persons with early-stage dementia: Longitudinal findings: Part 1', Dementia, vol. 14, no. 5, pp. 589-608. https://doi.org/10.1177/1471301213508399
Burgener SC, Buckwalter K, Perkhounkova Y, Liu MF, Riley R, Einhorn CJ et al. Perceived stigma in persons with early-stage dementia: Longitudinal findings: Part 1. Dementia. 2015 Sep 1;14(5):589-608. https://doi.org/10.1177/1471301213508399
Burgener, Sandy C. ; Buckwalter, Kathleen ; Perkhounkova, Yelena ; Liu, Megan F. ; Riley, Rebecca ; Einhorn, Carol J. ; Fitzsimmons, Suzanne ; Hahn-Swanson, Carolyn. / Perceived stigma in persons with early-stage dementia : Longitudinal findings: Part 1. In: Dementia. 2015 ; Vol. 14, No. 5. pp. 589-608.
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