Patient and parent reported outcome measures in cleft lip and palate patients before and after secondary alveolar bone grafting

Chun Shin Chang, Christopher Glenn Wallace, Yen Chang Hsiao, Ting Chen Lu, Sue Huei Chen, Fuan Chiang Chan, Philip Kuo Ting Chen, Jyh Ping Chen, Chee Jen Chang, M. Samuel Noordhoff

Research output: Contribution to journalArticle

Abstract

European and Northern American healthcare authorities increasingly encourage the use of Patient Reported Outcome Measures (PROMs) that complement clinical and laboratory assessments to help holistically evaluate reconstructive outcomes. This is the first study to evaluate PROMs in cleft lip/palate patients who have, or have not, undergone secondary alveolar bone grafting (SABG). A PROMs study was conducted; 40 consecutive consenting cleft lip/palate children between 8 and 14 years old were included. Twenty patients did, and 20 patients did not, have SABG. PROMs scores from children and parents in the 2 groups were compared. Forty patients completed the trial. No significant differences in total score from the Chang Gung Short Form-15 (CGSF-15) were found between children and their parents. Children with SABG reported no more oral-nasal regurgitation than children without SABG, but tended to report more nasal obstruction. There were no statistically significant differences in parent reported outcomes between the 2 groups. Cleft lip/palate patients who underwent SABG reported significantly less nasal regurgitation and more nasal obstruction compared to those patients who did not undergo SABG.

Original languageEnglish
JournalMedicine (United States)
Volume96
Issue number52
DOIs
Publication statusPublished - Dec 1 2017
Externally publishedYes

Fingerprint

Alveolar Bone Grafting
Cleft Lip
Cleft Palate
Nasal Obstruction
Nose
Parents
Patient Reported Outcome Measures
Outcome Assessment (Health Care)
Delivery of Health Care

Keywords

  • Alveolar bone cleft
  • Alveolar bone graft
  • Cleft lip
  • Cleft palate
  • Parent reported outcome measures
  • Patient reported outcome measures
  • Secondary bone grafting

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Patient and parent reported outcome measures in cleft lip and palate patients before and after secondary alveolar bone grafting. / Chang, Chun Shin; Wallace, Christopher Glenn; Hsiao, Yen Chang; Lu, Ting Chen; Chen, Sue Huei; Chan, Fuan Chiang; Chen, Philip Kuo Ting; Chen, Jyh Ping; Chang, Chee Jen; Noordhoff, M. Samuel.

In: Medicine (United States), Vol. 96, No. 52, 01.12.2017.

Research output: Contribution to journalArticle

Chang, Chun Shin ; Wallace, Christopher Glenn ; Hsiao, Yen Chang ; Lu, Ting Chen ; Chen, Sue Huei ; Chan, Fuan Chiang ; Chen, Philip Kuo Ting ; Chen, Jyh Ping ; Chang, Chee Jen ; Noordhoff, M. Samuel. / Patient and parent reported outcome measures in cleft lip and palate patients before and after secondary alveolar bone grafting. In: Medicine (United States). 2017 ; Vol. 96, No. 52.
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