Evolution of congenital haemophilia care in Taiwan

Yeu Chin Chen, Chia Yau Chang, Shin Nan Cheng, Ru Yu Pan, Yu Lueng Shih, Tsung Ying Li, Sheng Hao Wang

Research output: Contribution to journalReview articlepeer-review

1 Citation (Scopus)

Abstract

Haemophilia care in Taiwan has come a long way over the past 35 years, from the absence of specialised haemophilia treatment centres before 1984 to the establishment of treatment centers in the majority of medical centers, the listing of haemophilia as a catastrophic illness with full treatment reimbursement by the Taiwan National Health Insurance (NHI), and the implementation of full NHI coverage for prophylaxis therapy. This has led to outcome improvements such as reduced bleed-related morbidity and mortality, fewer viral infections, and enhanced overall multi-modality care. Most people with haemophilia (PWH) are now able to live normal, active lives. Early diagnosis has improved through increased awareness, physician education, and prenatal diagnosis; while comprehensive care, including state of the art rehabilitation and orthopaedic management for haemophilic arthropathy, eradication therapy for chronic hepatitis C, and better treatments for human immunodeficiency virus, allows PWH to enjoy a better quality of life and improved survival. Efforts are now being made to raise prophylaxis rates through full NHI reimbursement and the use of extended half-life recombinant factor products. Overall, Taiwan has made great strides in haemophilia care and we would like to share these experiences for the benefit of all healthcare providers involved in haemophilia care.

Original languageEnglish
Pages (from-to)582-591
Number of pages10
JournalJournal of the Formosan Medical Association
Volume121
Issue number3
DOIs
Publication statusPublished - Mar 2022

Keywords

  • Arthropathy
  • Comprehensive care
  • Haemophilia
  • Prophylaxis
  • Taiwan

ASJC Scopus subject areas

  • Medicine(all)

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